“My name is Sarah Day and I am the founder of The Ark Centre Charity. Below you can read about the journey myself, my partner Nick, and our children Noah and Isabella have undertaken during the years that led us to opening The Ark Centre Clinic.
I am personally very happy to talk to any parent who is thinking of The Ark Centre Clinic as an option for their child, or who just wants to talk to another parent in a similar situation.
Thank you all for your support, and good luck to you and your families.”
Founder of The Ark Centre Clinic and Chair Person of The Ark Centre Charity
Noah & Isabella’s story
“When our son Noah was born, we were over the moon. He seemed a contented little boy, but it wasn’t until he started nursery that we realised he wasn’t integrating well with other children and was happier to be on his own, playing with repetitive, spinning, noisy, flashing toys. We, as all parents do, blamed ourselves and started panicking when he wouldn’t talk or walk. At 14 months we suspected autism, but when Noah was seen by our doctor, his symptoms were dismissed as him being a ‘typical boy’ who was ‘lazy’ and a ‘late starter’.
After so many months of battling, by two years old, Noah was formally diagnosed with autism and we were devastated not knowing what to do to help him. We were put on a waiting list for a course and while we found there was not much support available, we realised we needed to ‘pull ourselves together’ to communicate with Noah and get the help we all needed.
The next two years felt like a roller-coaster… we sold some possessions and gave up our second car to fund a private clinic and tests that we hoped would finally give us the answers we needed for how to help treat Noah’s autism. We searched far and wide for more information, trying oxygen chamber therapy and attending courses on brain development, determined not to let our son down, which instead were all a disapointment. Eventually we found qualified people who could come to our home and use evidence based therapy to work one-to-one with Noah.
During this time, our daughter Isabella was born and in the years that followed, our worst fears were realised when she was also diagnosed with autism.
Despite our setbacks, we were so impressed with the therapists we found that visited our home to run the children’s programmes, and during the 3 years of therapy, it became clear that no one particular intervention could address all the difficulties my children had. Following some research, we discovered information about Behaviour Therapy – specifically, ABA – on the internet. Our therapists responded so effectively to the specific needs of our children, working with Noah and Isabella’s strong personalities through a combination of ABA, SLT and OT. This multidisciplinary approach made such a positive difference to their development, ability to express themselves and the way they could interact with their community.
On our journey, we had met and heard from many other parents of children who had been given a similar diagnosis and that, like us, could not find the help they needed. While the search for help had left us exhausted emotionally and financially, we were determined to use our experience to help other families. We wanted to give others the opportunities we had had, less the stress – and the high cost – of a home-based programme.
So, when the opportunity arose to set up an intervention centre, we knew we had to grab it with both hands! In June 2015, with a lot of work and the input of the four behaviour therapists who had helped Noah and Isabella, we first opened the doors to The Ark Centre Clinic. You may have already guessed by this point, but we chose the name ‘Ark’ as a reference to our Noah, the original inspiration for the whole project!
We have continued to learn so much since then and are glad we can use that knowledge and experience to provide treatment and support to families going through a similar journey to us. One of the main points of our own learning was the many different styles of delivering ABA there are – something we knew nothing about at the beginning of our journey – and how combining treatments in the right way can make such a positive and meaningful difference to a child’s progress. This is one of the reasons we are so passionate about The Ark Centre Clinic. Our multidisciplinary approach, in a social environment where children can learn functional skills in the context of supported play, continues to be so effective and rewarding for the children that join us.
As well as the difference we’ve been able to make in other families’ lives, since being at The Ark Centre Clinic, the transformation in both Noah and Isabella has been astonishing. Noah has already left The Ark Centre Clinic, but is now an engaging, cheeky twelve-year-old boy who loves a range of activities and surprises us every day. Isabella has also outgown The Ark Centre Clinic as such a friendly and sociable little chatter box. She now attends a local school for children with additional needs. The Ark Centre Clinic still provides an outreach support service to work with my children’s school to ensure thier progress continues. With all the difficulties the children face, not to mention the ups and downs we deal with as parents, we are so proud of our two amazing children who make us laugh every day.”
The story continues…
The Ark Centre Clinic is going strong; we receive applications from all over Essex and have had families from abroad move nearby to attend. The blueprint for the centre has even been replicated by a parent group in York and is following a similar model, which is something we are immensely proud of.
At present The Ark Centre Clinic is being managed by Emma Flaxman BCBA and runs as a 1:1 pre-school for children with autism or social communication difficulties. The centre provides therapy for 10 children in total (5AM and 5PM) and strives to be a gold standard therapy setting for young children.
The Ark Centre Charity continues to be run by myself and Nick and strives to provide parent support for children with autism and expand the support provisions within Essex and the UK.